The CT Scan showed that the architecture of his lungs was extremely abnormal so the doctors anticipated finding a Children's Interstitial Lung Disease (chILD) through the biopsy. The tissue showed nothing consistent with chILD, but the sample tested did confirm pulmonary hypertension (as we mentioned previously) accompanied by a severe case of chronic lung disease. While primary cases of pulmonary hypertension are rare and have unexplained causes, Trey developed pulmonary hypertension because of his lung disease. The lung specialist we worked with estimated that only about 20% of Trey's lungs were actually functioning, which caused his heart to work over-time. This You-Tube video has a good explanation about pulmonary hypertension: http://www.youtube.com/watch?v=U1jzkNdyt9Y&feature=related
While we may never fully understand what happened to our sweet Trey, we believe it was a true miracle we had five-long months with him. He was a strong little fighter, and everyone's prayers helped extend his time with us. Thank you again to all of our supporters!
We have and always will hold both Randy and Beth in our highest regards for the strength, love and compassion given during Trey's time here on earth. What we can be thankful for is the beautiful little girl; Stella; that you have given life to and continue to share with all of us here. We also hope that any finding made from the biopsy and other information from Trey's case can somehow help another baby's family struggling with the same issues. If we can assist in any way, large or small please allow us that honor.
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Trey was so strong and such a fighter now knowing how little lung function he had. I hope these findings do help some other babies in the future. Stella is beautiful! love the picture of her in the crib. You have both handled this with such strength and grace and I am sure there will be difficult days ahead but the 3 of you will make it through this sad time. I hope you are finally getting settled into the "new house" and enjoying being home. Sue Thomas
ReplyDeleteTodd Family,
ReplyDeleteI love the picture you posted...The Todd Family Portrait. I'm so sorry the lung biopsy didn't provide you with the information or the answers that you were hoping for. What it did re-confirm is what an amazing heart your little man had. He truly was all heart; full of love and working so hard to spend every possible second with you that he could. We love you guys and continue to pray for Trey's eternal happiness up in heaven and for the happiness of the Todd Family as you pick up the pieces and start your next chapter with Stella. Hang in there and know that we are absoluetly here for you any time. Love, Joel, Wendy, Hagen, and Adleigh
there is nothing more difficult than praying for our tiny infants, not knowing who will survive. Randy and Beth are an incredible testament to the love of parents towards their children. it is a great honor to have known, and worked with them, and their family ~ thank-you, Beth ann
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