Care Conference

When we first came to Fletcher Allen in mid-December we were assigned a social worker, Deanna Chase, to help us through our hospital stay.  When the babies were born Deanna began providing us with lots of services - she connected us to RMH, provided us with gas cards and ferry tickets through the Children's Miracle Network, is helping us apply for in-home services once we are able to bring Trey home, and arranged the meeting we had today with Trey's doctors and nurses (Thank you Deanna for all you do for NICU families!).  Typically a care conference is arranged just before a baby is discharged, but in our case we met to discuss a plan for Trey moving forward.  There were three attending neonatalogists, a neonatalogist fellow, a pediatric pulmonologist, the babies pediatrician from Malone Emile Bernedot (whom we haven't met yet!), and three nurses from Trey's care team present, as well as Deanna who documented our meeting.  It was really incredible to have such great minds all together discussing plans for our little boy.  We discussed the possibility of sending Trey to Boston for a tracheostomy, which would enable him to receive a high volume of pressure into his lungs through his throat verses his mouth or nose.  As parents we are hesitant to do something so invasive so we've decided to wait it out for a bit and see what Trey does.  We will have another care conference in three weeks and talk about the next step then.