Today was like a maintenance day for Trey. After a busy night of struggling lots of maintenace type procedures were accomplished today. Several access points were initiated for Trey (IV's and a central line) for medication and nutrition purposes, as well as for drawing blood for gas readings, labs, and tests. He did have a few episodes that required manual resuscitation but after altering his medications he has settled out and seems relatively stable. Good blood gas readings have even allowed the vent settings to be lowered slightly.
The viral tests all came back negative so it doesn't appear as though he is sick. We will find out if he has a bacterial infection within the next few days. The most recent chest x-rays don't appear to show any sign of aspiration (inhalation of milk into the lung cavity). So far why Trey is experiencing this major set-back is an enigma. The next step will be to do some advanced testing for any disorders that could cause his inability to breathe on his own. Some things he will be tested for are fatal, others are incurable. It has become important to know if he has an identifiable reason for the drastic difference between the course he has had compared to Stella.
For now we wait to see how he does. We are starting to go through the 'why is this happening' stage. Everyone here is completely paralyzed by this sudden change in his status. We had no warning sign, no indication that his progression was slowing. Continued prayers is all we can ask for - what exactly to pray for in terms of helping him is unclear to all of the doctors, but praying that he gets whatever it is he needs is critical now.
Looking ahead there are a few more options that can be explored if he doesn't turn a corner soon. We could look at options of more invasive respiratory support, and/or we could be sent to Boston, MA where they can provide more aggressive treatment. We are all hoping he can get better here where we are comfortable with the NICU staff and managing with the blessings of having access to the Ronald McDonald House.
Again, thank you to everyone for keeping all of us in your thoughts and prayers.
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Randy and Beth, i am praying that little trey gets better, i will pray for you to god to give you the strength to get through this. He is a strong little boy and you both are strong parents. I hope he gets better soon
ReplyDeleteLots of prayers are being sent your way.
ReplyDeleteLord, please Help The Todd Family and keep them toghter to love each other like a family.Lord we are all asking to Make Trey a stronger boy then he is right now. He has the best parents to Love him the way he will need to be Loved & He has a loving Sister who needs him to grow over the years with her. Please answer my pray. Love Jenn
ReplyDeleteYou are all in the thoughts and prayers of everyone at BMC. Many of us check the blog first thing in the morning to see how your family is doing. I have a sister-in-law who was born with cystic fibrosis and she doctors in Boston. They are amazing. Five years ago she had a double lung transplant after being on oxygen for a few years and she is currently in the hospital in Boston fighting an agressive skin cancer due to the anti-rejection meds. I highly recommend Boston if that is where you need to go to find your answers. She is the strongest and most positive person I have ever met. I think because she has struggled with her health all of her life and has come across challenges most of us don't has made her a true fighter. I believe Trey will be the same way. He will be a fighter...he will be strong... and he will better understand the importance of life and to make every day the best day ever. You will all get through this. God Bless each of you, Missie B.
ReplyDeleteKeeping you all in my prayers.
ReplyDeleteYou are all in our continued prayers. I know how difficult this rollercoaster can be. Have faith and try and keep your strength. We are always here if you need anyone to talk to!!
ReplyDeleteBeth and Randy I really have been thinking about you two a lot and hope that all is well for you, Stella and Trey. I will be praying that everything turns out ok. Love and miss you. Krista
ReplyDeleteJust to let you know we are saying extra prayers that Trey's doctors can find an answer, we will keep you all in our daily prayers. Butch and Sue Thomas
ReplyDelete