With Randy @ work most of the week I usually spend all day at the hospital - literally. From 9 am until 7:30-8:30 pm. Since we've been here for such a long time and have been disconnected from anything normal for what seems like forever, today I tried to adjust my routine just a bit. Rather than staying at the hospital all day I left for a few hours during the middle of the day. I was able to take care of a lot of things I had been putting off - paying bills, doing some things for work, running errands. I've been away from work nearly five months and it's time for me to get back at it. Not because I'm being pressured from my employer (everyone at SUNY Potsdam has been unbelievably supportive) but because I need something for myself to get through the coming months. I love to work and it felt good to feel productive today. We've spent so much time here just going through the motions. When I went back today for the second hold of the day (pictured above), I had just a moment where I felt truly happy holding the babies. These moments have been few and far between for me because our lifestyle is not ideal, it is actually just devastating. Reality set back in quickly because the hospital/NICU environment took over. Luckily for us Randy surprised us shortly after - we weren't expecting him until tomorrow night. It is awesome having him back.Trey has had a rough couple of days and today was no exception. Simply put - he has just been really agitated. His CPAP was turned back up to 6 today, and he was given some extra medication to help him settle. Not only did it make him feel better, it made it easier for me to leave for a few hours because I knew he would be sleeping the entire time I was gone. Late in the day some additional diuretics were started. Trey has required a bit more oxygen for parts of the day, but overall he really is doing well. We don't see the CPAP increase as a setback - there is no hurry to wean his support so he may as well have the extra pressure for now. I haven't had a hospital volunteer with me this week for every hold. Stella has been very well behaved for the most part, but on occasion she is situated on a pillow with Trey and I which seems to work out nicely and feels very special (even though they don't notice each other yet!).
You are such a super mommy! Nice to hear Randy came back early- what a nice surprise.
ReplyDeleteGlad to hear you are switching it up and taking time to focus on other parts of yourself and life in general.
You look so happy holding the twins:))
you look like a very proud mommy in that pic.That was great Randy returned with a surprize early.We think of you everyday,we also think your doing a great job dealing with the changes you face everyday when we know how bad you want to bring those two babys home. I loved the pic of you and your cat last weekend. That must of been great to sleep in your own bed.Well guys LOVE ya so much.Is there anything i can do?
ReplyDeletexoxo The Parkers
Hello,
ReplyDeleteI worked with Randy at BMC school a few years back. I return to BMC today and found out about the arrival of the twins.Congratulations they are beautiful. I also had a set of twins in September 09 who were in the NICU in Burlington. My twins were born at 32 weeks, I just wanted to say that I am thinking of both of and the babies and I know what you are going through. I wish you all the best and I will start and continue to pray for Trey and a speedy recovery. Sarah Bogett