Finding the balance...

As the days pass, it has become increasingly more difficult to find the right balance.  When do we eat?  Spend time with Stella?  Sleep?  Go to the hospital?  Not to mention doctors appointments, pumping, etc.  I'm sure it is something all parents go through, there is just an adjustment period, and I think we are going through that period now.

The really tough balance is trying to figure out exactly what Trey needs at the moment.  After a bad blood gas and a respirtory rate much lower than his norm, some things needed to be adjusted to try and make our boy more comfortable and happy.  His sedation meds were reduced, and his CPAP settings played with.  He continued to work hard most of the evening, although he did wake up for about two straight hours.  As mom and dad left for the night, they were going to increase his meds again to try and get him to rest.  He is a "rare" case, and finding a balance for him will not be the easiest thing, but everyone involved wants what is best for him.  He will tell us what he needs, and we will do the best to accomodate him.

We continue to realize how lucky we are for the generousity and goodness that people have shown us during our journey here.  Thanks again!