Care Conference #3

After Wednesdays incident we asked to move up the next care conference.  A group of doctors met with us on Friday and a lot of decisions were made.

Surgery has been scheduled for this coming Wednesday.  Trey will have a tracheotomy and a gastrointenstinal feeding tube placed.  This will allow him to receive respiratory support through his neck rather than his nose or mouth.  The feeding tube will give us an alternate method for feeding which he will need initially following the surgery and then later on when he is too tired to bottle feed.

Because Trey is now a pediatric patient versus a neonatal patient it makes sense for him to be transfered to a different area of the hospital.  We will be moving to the Pediatric Intensive Care Unit (PICU) either Monday or Tuesday.  The PICU will have several advantages:

1. We will have our own room
2. The staff are more accustomed to taking care of trached patients
3. We will be able to spread out a bit more and use our laptop and cell phone at the hospital when Trey is sleeping
4. Grammie, Pa, and Grandma can visit
5. One of us can sleep over with Trey if we would like, which will be really beneficial once we start preparing to bring Trey home on home ventillator support

Friday was overwhelming, there are a lot of changes ahead, all of which are very scary.  We hate to say goodbye to all of the wonderful people we've met in the NICU, and are especially sad and nervous about leaving behind Trey's nursing team and the doctors, all of whom have come to know our little boy well.  The time has come when all of this seems to be absolutely necessary for Trey's continued improvement so we hope to gracefully make the transition down to McClure 3.